Ann Jones is the Secretary of the volunteer Board of Management of Huntington’s WA, and she came along to provide some details of the disease and its implications for victims and their families. Huntington’s is an inherited degenerative neurological condition which affects areas of the brain that control movement, cognition and behaviour, and at this stage there is no cure and little by way of treatment other than medications that can ease some of the symptoms. Ann’s husband developed the disease around 1990, and he passed away a few years later. Unfortunately their two daughters, now in their late forties and early fifties respectively, inherited the disease and require constant care. The reaction that families and individuals have to the disease varies greatly, and whilst Ann has suffered greatly, she has chosen to take action to improve the environment in which Huntington sufferers and their families find themselves. Ann has been involved with helping people with Huntington’s not only at the local WA level but also globally, having been involved with the International Huntington Association for a number of years up to 2018. As a consequence of her dedication towards taking action to fix anomalies in the system, Ann became a Member of the Order of Australia in the General Division in the recent Australia Day awards. Here in Australia we are fortunate in many ways, but we do tend to waste money on policies and procedures that at best are bureaucratic but at worst, unworkable. Ann’s poignant address was certainly a wake-up call for us all.